What a weird day.
Cale did a couple things that were a little weird and I'm not sure what to think of them. After I got back from lunch today, I walked in his room, said "hi!" and he pointed at me. He did it three times really fast. I stepped closer to him and said hi again he touched my face three times really fast. I'm not sure that I know how to explain it very good. It'll be interesting to see if we're getting ready to enter into a new season or if it's just nothing at all. I think because I hadn't seen him do anything like that before, it stuck out to me. At the end of all the craziness, Cale grabbed my face and pulled me in for a kiss! Woohoo! :)
He seemed to be very agitated part of the day but at the same time in a good mood? I'm not really sure about that either. This morning he wouldn't let them do mouth care and was just not willing to do anything, but it wasn't the normal off day. I think this is coming out all confused like it is in my head!
An exciting thing is Cale made a new record today on how many steps he's taken! I'm not sure how far it is yet but for sure over 100ft!
It's Shawna's last night here with me. It's sad to say good bye. She's been such a blessing.
Part of today was really hard for Cale. Can you continue to pray for the infection he has? It's so miserable for him. It broke my heart this afternoon seeing him in so much pain and so worked up. It took a little while to calm him down and then once I did, he was so sweet and let me talk to him and a couple times he reached out to my face. Those moments are so amazing. I remember being so desperate to feel his touch.
Faith isn't the ability to believe long and far into the misty future. It's simply taking God at His Word and taking the next step.
- Joni Erickson Tada